Meeting Information

Date: June 30, 2017A 2017 Rare Disease Day at NIH exhibitor speaks to an event participant.

Time: 9:00 a.m. - 4:15 p.m. (Eastern)

Location:

John Edward Porter Neuroscience Research Center
National Institutes of Health
35 Convent Drive
Bethesda, Maryland 20892

Overview: 

The National Center for Advancing Translational Sciences at the National Institutes of Health will hold its inaugural NCATS Advocacy Day ― Partnering with Patients for Smarter Science on June 30, 2017. The purpose of the event is to inform patients and their advocates about NCATS, including its philosophy and programmatic approaches; identify patient needs; and collectively discuss ways for improved patient inclusion in NCATS’ translational science activities.

Admission is complimentary, but space is limited so be sure to register early.

The full-day event will feature presentations, interactive activities and a poster session to provide more details about NCATS programs and initiatives. Designed for patients, families, caregivers and patient advocacy groups, the event will foster an open dialogue among patients and their advocates to discuss common translational science roadblocks, brainstorm ideas for improvement and apply that knowledge to strengthen patient and community engagement at NCATS. Join in the conversation on June 30, 2017, via #NCATSAdvocacyDay on Twitter.

Event Objectives:

  • Educate patients about how they can interact with NCATS
  • Educate NCATS on how to develop and strengthen patient and community engagement
  • Provide tangible avenues for communication and research collaboration with NCATS


Event Goals:

  • Identify patient needs
  • Align them with patient community engagement activities within NCATS’ programs
  • Identify gaps in patient community engagement where needs are not being met
  • Brainstorm possible improvements and develop potential solutions together


Guiding Principles:
This event will:

  • Foster an open dialogue among patients and their advocates
  • Be more instructional in nature
  • Serve as a science experiment in itself, as the first of regularly planned engagement events
  • Focus on common translational science roadblocks for patients, rather than disease-specific problems
  • Gather information to improve and strengthen patient and community engagement within NCATS


Key Audiences:

  • Patients
  • Families
  • Caregivers
  • Patient advocacy groups
  • Researchers

 

If you have any questions about registration, please contact:

Carly Sullivan
Palladian Partners, Inc.
8484 Georgia Avenue, Suite 370
Silver Spring, MD 20910
301-273-2817
csullivan@palladianpartners.com

For content questions, please contact:

Shelley Brown, Ph.D.
National Center for Advancing Translational Sciences
NCATSAdvocacyDay@nih.gov


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